i) Books & reports

Coping with ABI

Head Injury, the facts

Audrey Daislet, Rachel Tams, Udo Kischka, Head Injury, the facts. Oxford University Press, 2009

Explains how the brain is affected with a head injury, the problems that arise and how to cope. (Head Injury is the term for TBI in the UK.)

Brain Injury Survival Kit

Cheryle Sullivan Brain Injury Survival Kit 365 Tips, Tools, & Tricks to deal with Cognitive Function Loss.

This is a resource for people with TBI and their families. Many of the tips apply to other kinds of ABI.

Australian statistics

The definition, incidence and prevalence of acquired brain injury in Australia - AIHWPDF

The definition, incidence and prevalence of acquired brain injury in Australia released: 20 Dec 1999

This report presents newly derived estimates of rates of hospitalisation associated with acquired brain injury, and the prevalence and demographic patterns of disability attributable to acquired brain injury in Australia. Definitions of acquired brain injury used in the disability and medical fields, and in legislative and administrative contexts are critically examined, and existing estimates of the incidence and prevalence of acquired brain injury, and of the proportion of incident cases that lead to long-term disability, are reviewed.

Disability in Australia: acquired brain injury Summary Acquired brain injury (ABI) - AIHWPDF

Bulletin 55 • December 2007 Disability in Australia. This bulletin provides data on the prevalence of ABI in Australia, and includes details of the support needs of, and services received by, people with ABI-related disability. It updates key analyses published previously (AIHW: Fortune and Wen 1999; AIHW 2003).

Professional skills

Good Practice in Brain Injury Case Management

Jackie Parker (ed), Good Practice in Brain Injury Case Management, Jessica Kingsley Publishers, 2006

Systematic Approach to Social Work Practice: Working with Clients with Traumatic Brain Injury (download) PDFMargaret A. Struchen, Ph.D. Research Scientist, Brain Injury Research Center TIRR Memorial Hermann Assistant Professor, Dept. of PM&R Baylor College of Medicine Allison N. Clark, Ph.D. Assistant Professor, Dept. of PM&R, Baylor College of Medicine, 2007

Guidebook for Psychologists: Working with Clients with Traumatic Brain Injury (download)PDF Margaret A. Struchen, Ph.D. Research Scientist, Brain Injury Research Center TIRR Memorial Hermann Assistant Professor, Dept. of PM&R Baylor College of Medicine Lynne C. Davis, Ph.D. Research Scientist, Brain Injury Research Center TIRR Memorial Hermann Stephen R. McCauley, Ph.D. Assistant Professor, Dept. of PM&R Baylor College of Medicine Allison N. Clark, Ph.D. Assistant Professor, Dept. of PM&R Baylor College of Medicine, 2009

Making Connections After brain injury: A guide for social peer mentors (download)PDF Margaret A. Struchen, Ph.D. DeLisa West, Ph.D. Niki Cannon LaTricia Eckenrode Patricia Backus, CCC-SLP Shawn Jaffrey, CTRS Melissa Gautreau, B.S. Jerome S. Caroselli, Ph.D. Lisa Keenan, Ph.D. Baylor College of Medicine, 2006

Pathways and Services in NSW

In 2010 the Pathways and Protocols Working Group, a sub-group of the Steering Committee for the Interagency Agreement on the Care and Support Pathways for People with an ABI prepared:
Care and Support Pathways for People with an Acquired Brain Injury, PDF
Referral and Service Options in NSW
. May 2011 (3.1 Meg)

This document includes both sample pathways and lists of services.

People's stories

Paper Cranes

Cheryl Koenig, Paper Cranes, A Mother's Story of Hope, Courage and Determination, An Hourglass book, 2008

Cheryl Koenig's life changed forever the day her 12 year old son Jonathan was involved in a car accident. Jonathan was given very little chance of survival. Now, more than ten years since the accident Jonathan lives a rich and fulfilling life. Paper Cranes draws on the diary Cheryl kept during the rehabilitation process.

Jonathan's story is one of the 8 video stories used on this site.

Head Cases

Michael Paul Mason, Head Cases, Stories of brain injury and its aftermath, Farrer, Straus and Giroux, New York,2009

Michael Mason coordinates care for people with brain injury. In the book Michael tells the stories of 12 people as they struggle to make sense of what has happened and get on with their lives.